MAP-PRO was founded by a group of mental health clinicians and researchers specialized in early intervention for psychosis in Canada. Partnering with service users, families, clinicians, researchers, health administrators, policy-/decision-makers and other partners (e.g., community organizations), MAP-PRO aims to: (1) Build a robust and secure data repository platform for early psychosis services for the storage, analysis, sharing, and reporting of data; (2) Create an information hub about measurement-based care and the collection of patient-rated outcome measures (PROMs), patient-reported experience measures (PREMs), family-reported outcome measures (FROMs), family-reported experience measures (FREMs) and clinician-rated outcome measures (CROMs) in early psychosis services; and (3) Create a learning hub to build capacity for routine outcomes assessment and measurement-based care.
The bilingual information hub contains a fully searchable library of measures used in early intervention for psychosis, created based on a literature review. It also has a library of all Canadian and international guidance documents (standards, guidelines, etc.) in early psychosis.
We are also working on a data governance framework and a data repository for early psychosis program, that will allow data sharing, visualization, reports and multi-site research publications.
Partners & Collaborators
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Manuela Ferrari (McGill University; Douglas Hospital Research Centre; Co-lead)
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Amal Abdel-Baki (Centre hospitalier de l’université de Montréal (CHUM))
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Donald Addington (University of Calgary Hotchkiss Brain Institute and Mathison Centre for Research & Education)
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Christopher Robert Bowie (Queen’s University; Early Psychosis Intervention Program; Centre for Addiction and Mental Health in Toronto)
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Ridha Joober (Douglas Mental Health University Institute; Prevention and Early Intervention Program for Psychosis (PEPP-Montreal)
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Marc-André Roy (Université Laval; Notre-Dame des Victoires Clinic)
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Jai Shah (McGill University, Prevention and Early Intervention Program for Psychosis (PEPP))
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Phil Tibbo (Dalhousie University, Halifax. Early Psychosis Intervention Nova Scotia (EPINS))
Funders
CIHR and Canada Foundation for Innovation—John R. Evans Leaders Fund (CFI- JELF).
